Allergies - Something needs to be done for people with allergies!

by only inside
(VA)

For the past thirteen years, I have been in a phenomenal world. If I had not experienced it for myself, I would have never thought anything like this ever existed. Ever since I can remember I was allergic to bee stings and penicillin. The doctors said I would probably grow out of it. By the time I turned 27, I had been in and out of the hospital for what was thought to be sinus infections and other things. I don't know what I was thinking of half of the time, and finally no meds were fighting anything. Finally, I was diagnosed with allergies, and all the doctor told me is I was allergic to everything but a short-haired dog. He gave me no real restriction and played specialist in his office by offering me weekly shots.
I got better for a while after a year of shots, and was even focused on practicing nursing. After I passed the certified nursing class, I became very ill and then it was worse than ever. The shots were not holding up and neither were the pills, so he tried to switch me over, failing to realize that I was going to be allergic to the first 15 pills he tried out on me. Lots of steroids and other meds along with the shots came into the picture and I was still having attacks. I changed doctors and she immediately sent me to a local specialist, who after two visits, on the first one, I made it into the lounge and they had to wheel me to the emergency room, I was about to explode.
The nearby specialist looked at me with this look as if he were scared to death and said, I cannot help you and you will need to be referred elsewhere. O.K. now I am wondering, what is really going on here? So, off to the hour away specialist I went and I had a different type of allergy test this time and learned that fish and latex were my highest allergies, among other things. By the age of 29, I was on ten meds two to three times a day. Sometimes two types of steroids which continued for months at a time. I had my immune system rebuilt which made me very sick. After all of that, I still had serious attacks that only the emergency room could calm.
The specialist was so cool, like he had it all figured out and then one day, he looked at me with the same scared look and said I will have to refer you to even a higher specialist. O.K. I am really wondering, what is going on? I have about 5 different personalities by now and have blown up like a beached whale. Sometimes you could see me and sometimes you seen something, but could only tell at one time it used to be human. I found out nobody really knew, I was the only one with allergies to so many things still living in the state of VA. I flipped, I took on about five different roles and lost to hell.
I ran to Florida, I had to find out, and if it was meant to be, I would make it. I had to give up my kids, I barely took care of myself. Two years, after living in Florida, I had researched and performed experiments on myself, got rid of all the meds and ended up surviving with little reactions for two years on benedryl and ibuprofen. I even looked human again, still chunky and swollen, but nonetheless I was living and moving. Well, something happened there when the red tide came, again, I was restricted to inside most of the time. I had most of the food down pat and the smells that caused reactions. I had to come home, my family is here in VA. My kids are being raised by people I love and I dont have anything to offer to them.
I am trying to change that and going for disability, the the main reason I am writing is because so many people are unaware of this condition and it does take lives. Products in the stores add things in the foods, and if you dont read all the ingredients then it could be the time to die. If it's not foods, then it is clothing or things that I normally use. I just have nothing and these inconveniences are not good for anyone like me. Lack of understanding does not help. The specialists are still finding things and have almost caught up to what I have learned. I cannot even wear a maxi pad now without having a reaction, because the one I found I could wear had to become new and improved.
I am scared to death to go to a doctor, because they love to see what all they can find. There is no cure, I need some shots and to be able to go to the store and find things that are not going to kill me. When I do gather me a life together, I hope it is not too late for my kids to know me and love me. I am going to school online to try and keep my mind. I do not know all I have really been through, because it was like I was so many people without morals or understanding. Does anybody have any suggestions? I do not know what else to do.